Tag: rare disease
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Isla’s CHOPS Journey: A Rare Disease Spotlight from Australia
Meet Isla: A Teen with CHOPS and a Global Community Isla Steed, a 14-year-old from Port Lincoln on Australia’s Eyre Peninsula, may seem like a typical teenager to many. Her mum, Kylie Steed, describes her as a stubborn, technology-loving foodie who also has a favourite word: “no.” What sets Isla apart is a diagnosis shared…