Tag: cystic fibrosis
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Meath Councillor Urges Reinstatement of Glucose Monitoring Funding for Cystic Fibrosis Patients
Campaign to Restore Essential Care for CF Patients During a recent Meath County Council meeting, Fine Gael Councillor Sarah Reilly called on local authorities to advocate for the reinstatement of funding for glucose monitoring under the Primary Care Reimbursement Service (PCRS). The move aims to ensure that cystic fibrosis (CF) patients have continued access to…
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Meath Councillor Urges CF Glucose Monitoring Funding Reinstatement
Meath County Council Debate Turns to Health Funding At this month’s meeting of Meath County Council, Fine Gael Councillor Sarah Reilly called on the local authority to act on a key health funding issue affecting people with cystic fibrosis (CF). Councillor Reilly proposed that Meath County Council write to the Minister for Health and the…
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Meath councillor urges reinstatement of glucose monitoring funding for cystic fibrosis patients
Meath County Council considers funding reinstatement for CF glucose monitoring At a recent Meath County Council meeting, Fine Gael Councillor Sarah Reilly urged local authorities to advocate for the reinstatement of funding for glucose monitoring devices through the Primary Care Reimbursement Service (PCRS). The proposal comes as part of broader efforts to safeguard affordable, ongoing…
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Vertex to Present at UBS Global Healthcare Conference on November 11, 2025
Vertex to Present at UBS Global Healthcare Conference on November 11, 2025 Vertex Pharmaceuticals Incorporated (Nasdaq: VRTX) today announced that its leadership will participate in the UBS Global Healthcare Conference. Reshma Kewalramani, President and Chief Executive Officer, will participate in a fireside chat on Tuesday, November 11, 2025, at 10:15 a.m. ET. The discussion will…
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Vertex to Present at UBS Global Healthcare Conference 2025
Vertex Announces Participation in UBS Global Healthcare Conference Vertex Pharmaceuticals Incorporated (Nasdaq: VRTX) announced today that its leadership will participate in the UBS Global Healthcare Conference. Reshma Kewalramani, President and Chief Executive Officer of Vertex, is scheduled to take part in a fireside chat on Tuesday, November 11, 2025, at 10:15 a.m. Eastern Time. The…
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More Families Raising Children with Cystic Fibrosis Staying in the Bush
Rural CF families form a close-knit network In Longreach, a remote outback town with a population of about 3,647, two young girls with cystic fibrosis (CF) are navigating life with a disease that is both challenging and manageable thanks to advances in care. Connie Lacey, age 4, and Sienna Machin, age 10, are described as…
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Cystic Fibrosis in the Bush: Rural Families Raising CF Kids
Outback Life Meets a Rare Challenge In the outback town of Longreach, population 3,647, families coping with cystic fibrosis (CF) face daily realities that blend resilience with stubborn practicality. Connie Lacey, 4, and Sienna Machin, 10, are as close as sisters in spirit, yet interactions are carefully measured to avoid cross-infection. The girls describe a…
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Cystic Fibrosis in the Bush: Rural Families Navigating Care in Outback Australia
Outback life and the growing community of CF families In Longreach, a remote outback town about 1,200 kilometres from the Queensland Children’s Hospital, families living with cystic fibrosis (CF) are choosing to stay where they know the country and their neighbours best. Connie Lacey, 4, and Sienna Machin, 10, are like sisters in spirit even…