Introduction
Leona Macken’s story is one of resilience and determination in the face of life-altering challenges. Diagnosed with stage 4 cancer after enduring two misdiagnoses of her smear tests in 2016 and 2020, Leona’s journey has transformed not only her life but the lives of her family. As a devoted mother to her two daughters, Quin and Drew, Leona’s coping mechanisms and positive outlook set an inspiring example amid adversity.
The Perfect Life Before Cancer
Leona reflects on her idyllic life before the diagnosis, describing it as “the perfect life”. With her husband Alan, she created a nurturing environment in Dublin for their two daughters. “We had it all, two perfect kids and a lovely setup at home,” she reminisces. Leona recalls a time spent enjoying life’s simple pleasures, from hanging out with friends to building a home filled with love. However, her world took a drastic turn when her health began to fail, revealing the reality of misdiagnosed cervical cancer.
Cancer Diagnosis and Its Emotional Toll
In 2023, Leona finally received a correct diagnosis after years of battling debilitating symptoms, including pelvic pain and unexplained bleeding. Despite her lifelong commitment to health—including regular smear tests—her concerns were often dismissed. “I began to think people just thought I was complaining about nothing,” she shares, expressing the frustration many women face in being heard regarding their health issues.
Leona’s second smear test conducted during the CervicalCheck scandal highlighted the urgent need for reform in how women’s health issues are addressed. After receiving a cancer diagnosis, she underwent a hysterectomy, only to later discover that the cancer had progressed to stage 4. This devastating news prompted Leona to shift her focus from denial to action, embracing the support of her family and friends to navigate the challenges ahead.
Creating Joyful Memories Amidst Struggles
Amid her health challenges, Leona strives to create joyful moments for her daughters. When faced with hair loss due to chemotherapy, she involved them in the experience, making a seemingly daunting process into a fun and memorable family activity. “It was actually a really funny moment and we were all having a good laugh… I just wanted to help them not to feel afraid,” she recalls. Through these moments, Leona aims to shield her children from fear, nurturing happiness in the midst of hardship.
The Court Case and Its Impact
Leona’s diagnosis led to a significant legal case against the Health Service Executive (HSE) for the mishandling of her smear tests. In June, the case concluded with an apology from the HSE, acknowledging the failings that led to her diagnosis. Although she received a settlement that could facilitate further treatment, Leona struggles with the notion of valuing her life in monetary terms. “Is that what my life is worth?” she ponders, underscoring the emotional complexity of her situation.
Advocacy and Hope for Change
Despite her personal battles, Leona remains committed to advocating for better healthcare for women in Ireland. By seeking to meet with Health Minister Jennifer Carroll MacNeill, Leona hopes to address the urgent need for changes in the CervicalCheck program, seeking justice not only for herself but for other women with similar experiences. “Women deserve better, and we know our own bodies,” she asserts, emphasizing a collective responsibility to improve healthcare standards.
Life Beyond Cancer
As Leona continues her battle with cancer through immunotherapy, she embarks on a journey filled with hope and resilience. She actively researches alternative treatments and emphasizes making healthier lifestyle choices. “Before I eat anything I always ask myself, ‘what will this do for me?” Leona’s proactive approach illustrates her desire to reclaim control over her health and well-being.
Conclusion
Leona Macken’s journey is a poignant reminder of the battles many face in silence. Through her trials, she embodies strength and the importance of fostering connections—even in the most challenging times. Her story inspires others to advocate for their health and seek support within their communities. Leona’s journey is far from over, but her determination to create a positive legacy for her daughters signifies a profound commitment to hope, resilience, and love.
